Tuesday, 28 October 2014

Monday and Tuesday

Saturday nathan played a soccer game in aldergrove, we had to be there for 8:30 am!  It was a wonderful game and Nathan's team did very well passing and playing together.  They are undefeated so far this year.  Nathan's nickname is the wall as he likes to play the last defender and he does not let much get past him.

Gigi had an extended cheer practice on Saturday, to get their routine down. 

Sunday we all went as a family to stick and puck.  I had a great time but my back is pretty sore now.  Playing hockey for 1.5 hrs is hard when your not the greatest skater.  It was fun to play hockey as a family though.  


Monday kids woke up early and played with daddy all morning, playing games and snuggling and enjoying a nice leisurely breakfast.  Jeff had a later fight today and we all really enjoyed the extra 3 hrs today, felt like an extra day. 

We then had to take him to the airport and rush back to get nathan a pair of cowboy boots.  We went to the pumpkin patch/corn maze on Friday.  The corn maze was a mudpit.  10 minutes in the stick mud, lifted up Nathan's sole.  20 minutes in his whole sole came off.  By 30 minutes he was pretty much in his socks walking through the mud!   So new boots we needed.   

In horse riding lessons nathan loped for the first time, he broke into song saying I believe I can fly...  He said it felt like he was flying!  His face was awesome to see!


Tuesday morning and we woke up to this on nathan 


It does not hurt, but it hurts to open his eye as it's sensitive to light.  He is extremely tired despite having 12 hrs of sleep last night.  He is laying on the couch not able to do much.  We are going to try and go to piano but I think that is all we will accomplish today.   TIA, Occular migraine, Vascular migraine???  Who knows. 

This is what nathan did today...



It is now 5 pm and what a weird day it has been!  Nathan has had his first complex visual hallucination!

So while we were at piano, Nathan and I were sitting and playing a math game, he was not really with it, kinda confused like.  I mentioned to him that if he feels weird while with his teacher he is to let the teacher know, as I would like to know if he feels anything.  I told him that becuause he woke up with a blood shot eye, I was expecting him to have some weird things to happen.  He then remembered he went blind earlier in the day, he said he forgot.  So right after I took the picture of him lying on the floor I had said no school for today as I did not think Nathan was feeling well enough so he went to his bedroom.  He got something off of his dresser and he lost vision, he thought maybe it was his left eye or maybe even both eyes, it was a curtain coming down.  He had the queezy stomach and had to sit down as this happened.  He then said he felt confused and forgot to tell me...

So I let his piano teacher know that he was having a weird day and if she noticed anything to let me know.  I told marlene I was in the building and where I was.  So I lost track of time and was 5 minutes late getting back so I did not see his teacher but our very good friend has piano lessons at the same time, and my friend was sitting with him.  So I said how was it, good good.  And the all of a sudden he says, well I kinda felt like I disappeared when I was at piano, like I could hear and then I couldn't.  He didn't say much more, even though I had asked him a few questions, and then 5 minutes later, he remembered what happened.  He says his teachers voice slowly faded away, and everything went black, He said this felt peaceful, and then he saw stairs being raised, one at a time, he said it was really cool, the stairs were black too, and then a door formed and a handle.  The door then opened and everything was white, and he say his teacher but she looked like a cutout and was completely black.  And then he heard his teacher ask Nathan are you okay, he said he woke up and said yes I'm fine.  I asked him why he did not tell his teacher, he said at the moment he totally forgot what happened and he thought he was fine.  It was not until he was telling me what happened that he knew something happened.

Nathan is doing okay and is not scared or concerned, he joked about it and said well its normal for me.  I told him I sent a message to DR pleydell pearce.  I did talk to Nathan and tell him that sometimes people can get hallucinations that are sometimes scarry, he did not like this idea so much.  I said well did it seem real when it was happening and he said yup it seemed really real.  I thought I should warn him just to prepare him, as I have read complex visual hallucinations can be scary too.

A side not Ginger has been acting weird all day, she has been whining even with Nathan right there beside her.  Maybe she senses something is off with Nathan.

2 comments:

  1. What an interesting (and scary) phenomenon - Nathan is impressively brave. It is very helpful for him to be able to describe the experience so vividly. I would be curious to see whether Dr. Pleydell Pearce thinks the visual hallucinations are related to the blood shot eye. Keep me posted if there are other episodes...

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  2. Yes he does think it is related to the blood shot eye. Nathan has woken up with a blood shot eye previously and had weird things happen to him before. But he has never been able to recall a hallucination before, but I think he did have one about 2 years ago, but he had what appeared to be a drop attack right after, and he could not remember anything that he was doing. But he was reaching out to the coffee table, just above it, which had nothing on it, and he had a really weird look to his face hard to describe, and then he fell to the floor, smashing his arm into the iron, and glass coffee table.

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