Friday, 10 October 2014

Goats milk Soap

Today we went back to Neverland Farms today.  Nathan and Genevieve made goats mild soap.  They both enjoyed this workshop quite a bit, a lot more than the cheesemaking.  This workshop was more hands on and they each had their own workstation, and they each could make their own soap.  They had to do all the work.

I confused today and somehow got the times mixed up, or I didn't have the right times, anyway, I showed up a few hours early.  So I called a person I have met online who has EDS and lives in Mission.  I had told her I would be in Mission on Friday, but she is an EDSer and well our brains don't always remember thins, so she had forgotten, but was very happy to welcome us over.  She has a 8 year old son who she is homeschooling.  Nathan and Genevieve went and played outside with her son, and mom and I had time to chat.  Nathan really enjoyed himself!  I think he really likes meeting other children who are like him, we have met one other family so far, and he thinks its pretty neat.  The mom and I had time to discuss life with EDS.  She is just recovering from a craniotomy for two brain aneurisms, that dissected.  My dad has an aneurism in his abdominal aorta that they are going to keep monitoring for now.  I guess this is why when I tried to get life insurance, it was next to impossible.  And the one company that offered me insurance charged me 4 times what I would have been prediagnosis.  Unfortunately with Hypermobility type Ehlers Danlos, there seems to be a lot of crossover with vascular complications.  Hence Nathans almost daily nosebleeds, and maybe his weird vascular migraines.    Anyway a great visit, and nice to meet someone in person.

We then came home and are excited to have a weekend off.  On the way home we did listen to skip counting CD.

3 comments:

  1. Have the kids used their soap!? :)

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  2. They have! And I think they will use some bars as Christmas presents.

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  3. I am sure you have a lot of helpful advice for families coping with EDS. There are so many variations for the symptoms.

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