We woke up early and left the house by 7:20. Traffic was horrible and took us forever to get to children's. Our appointment was for 9:30, we were not done until 12:30. This appointment was Pediatric ophthalmologist. We went over new symptoms, she checked everything out. She felt bad that she has no answers for us, she recomended we see neurology again, she was asking well what does neurology say. Ummm neurology doesn't really tell me anything :). She has moved us back to yearly exams, unless we need or would like to see her sooner. My first appointment with her, I didn't really like her, I didn't connect with her, I have definitely changed my mind. Our first appointment she was researching eds, as she didn't know much about it. It scared me at first. But since seeing other drs who pretend to understand, I will take the drs willing to learn from me. It just scared me at times that I must be the expert :). Last appt with the ophthalmologist I didn't bring our big medical binder, she asked me to bring it to this appt. I didn't bring it because I think I can look intimidating to drs when I bring it, and look like I'm trying to run the show, I don't think our neurologist likes that :)
Anyway stopped for lunch on the ride home, it was then close to cheer time so we didn't go home. I got Gigi out of cheer at 5:45 15 minutes early so we could get Nathan to his soccer game in chilliwack at 6:30
Nathan loved his soccer game, he is back to big fields and big nets, he had an awesome game. He even scored his first goal in 3 years! Nathan plays defence and loves it! He really is an awesome soccer player.
Yay for soccer, Nathan!! Way to go!!
ReplyDeleteAnd yes, it's unfortunate when doctors are intimidated by the information you bring. However, you truly are the expert on Nathan. As much of a responsibility as it must feel at times, you have done a great job determining his diagnosis and how to help him. I think the specialists should send other eds families to you for advice.
Rachel